Butterflies Newsletter 15th November 2019
Published on: 17th November 2019
By Tracee Cossey
BUTTERFLIES CANCER SUPPORT GROUP NEWSLETTER
Friday, 15th November 2019
*We meet every Wednesday at Dorchester Community Church, (next to the new Damers School, by the Great Field in Poundbury), Liscombe Street, Poundbury, Dorchester, Dorset, DT1 3DF: from 2-4pm.
We’ve had some more new members lately, and our little group seems to be getting the ‘word out’ more. Do tell friends and family about us, we are a group for anyone who has experienced cancer, at any time in their life, their friends, families or carers. Pretty much - anyone who has been affected by cancer - at any time; whether the person is in remission or not.
We’re nearly ready for our Christmas Cracker event, but we are now not sure if the Cerne Abbas one will go ahead, as we lost our slot ☹ (for now, but we are on the first reserve list). Do feel free to come and join us at our Christmas Cracker stall on Thursday, 5th December – and do bring lots of pennies to buy our wares too – we have plenty of goodies.
This Wednesday, Abbigail from Dorset Community Hospital will be joining us to talk about research and reflexology. Do come along and dip in for an interesting discussion. We will, of course, have the usual coffee/tea and chat too, along with activities.
Tel: 07591 100672/07766 576639
At each meeting we always start with a good old chat and catch-up, along with tea/coffee and some lovely biscuits. At most of our meetings we either have one or two speakers (on a whole range of subjects, not always cancer related) or an activity of some sort such as Creative Writing.
FREE THERAPIES AT EVERY MEETING
- Aromatherapy and Reflexology with Tracee – every Wednesday of the month.
- Regular 1-1 consultations with Mary Tassell, herbalist
- Regular 1-1 meetings with counsellor Lynne O’Brien
Aromatherapy and Reflexology
Tracee Cossey attends weekly to give massage and reflexology to members. She has worked in a chemo unit in Bedfordshire for three years and has a degree in Complementary Therapies. You can see her website here: http://www.ametrineholistics.net – to book on for the day, there is a first-come, first served basis sheet on the table where we meet where you can sign to say what you’d like.
We have a trained counsellor who joins us, who comes to Butterflies on a Wednesday afternoon. Sessions are 1hr and usually last for at least 6 weeks. Lynne O’Brien is charging a reduced rate of £25p.h and funding is available if you need help meeting the cost - please speak to Rosa or Dick. To book a session, ring Lynne 07580 092388 You can view her website at: http://www.dragonfly-counselling.co.uk/
Herbalist Mary Tassell attends regularly to do 1:1 consultations for specific queries.
Mary has been working as a qualified herbalist for 23 years and is experienced in working with cancer patients.
For more information please visit Mary’s website at: http://www.tassell.net/
Julia and Roy from About Face regularly attend our meetings to support people with head and neck cancer.
Have a look at the books in our library, which are held on the tables in the Community Church, they will be put out for us every week to view. They are free for anyone to borrow but please let me know so I can mark it as out on loan. We aim to provide as many books as possible covering the wide spectrum of cancer, from Macmillan information booklets, self-help books and nutrition, to “my story” etc. If you’ve got a book you’d like to donate to our library then please feel free – we’d greatly appreciate it.
Remember, as always, you're welcome to come and go as you wish and you don't have to join in any of the activities if they don't interest you. You may just want to come for a chat or one of our therapies. You may want to bring a friend or member of the family with you.
Wednesday, 20th November 2019 – Abbigail, DCH Reflexologist
Abbigail is working at DCH Fortuneswell Ward and Chemotherapy unit and busy helping to put the final touches to a draft research protocol.
The aim of the research is to test the feasibility of reflexology in patients with lower limb secondary lymphoedema following cancer treatment.
Lymphoedema is an on-going problem for both male and female cancer patients affecting mobility and quality of life.
We are planning the research to be conducted at Dorset County Hospital in 2020.
Before we can submit the protocol to the ethics committee we need to carry out a public engagement event.
When Abbigail comes, she will present a research overview explaining the study and the important role research has in developing cancer services. Accompanied by a demonstration with the purpose of obtaining group feedback. Copies of the draft protocol will be available at the meeting for your group members to read.
Abbigail will be happy to offer an "open floor" policy in other words endeavour to answer any questions that arise throughout the session.
Wednesday, 27th November 2019 - Sarah Cooper, Creative Writing from 2:15pm
Sarah Cooper will come again on this day, doing a Creative Writing session. This is nothing like the courses that you see and is more about just putting pen to paper and seeing what happens. Sarah says it doesn’t matter what you write, even if you just write your shopping list! In practice, members find that it’s a safe way of getting in touch with, and expressing, their feelings. These sessions are always hugely enjoyed by everyone who takes part.
Do feel free to visit our website: www.butterfliescancersupport.co.uk
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About Face run a monthly support group. Their next meeting will be held on:
Thursday, 5th December 2019
At 7pm until 9pm
(arriving from 6.45 onwards)
In the downstairs sitting room
“The support group meetings will be held on the FIRST THURSDAY OF THE MONTH at the About Face house. Initially the group will be led by Muriel Hall, Ann Copland and Shaun Wright. We want to use the downstairs lounge and kitchen as we are aware the stairs can be problematic for some.
Please can you let Jane know if you are likely to attend by return email or phone. Email Jane: email@example.com or you can text/ring her mobile on 07966 905595.
Information below supplied by Emma Scott, Community Development Officer, Dorchester Town Council.
Events & Activities
St. Peter’s Grand Christmas Market
Saturday 30 November 10am -1pm at St. Peter’s Church
There will be lovely homemade gifts to purchase for Christmas presents and delicious cakes, biscuits, preserves and other goodies to buy.
Refreshments will be available with entertainment from the DASP Children’s Choir.
Father Christmas will be there and there will be a present for all his visitors.
Come and enjoy all the fun of the Christmas Market. For enquiries email Rosalind on firstname.lastname@example.org
Dorset Council Domestic Abuse Forum – Annual Conference ‘There’s No Coming Back’
The event is taking place on Monday 25 November 2019 from 9.00am-16:00pm.
Venue: Dorset Council Offices, South Walks House, South Walks Road, Dorchester, DT1 1UZ.
This event is suitable for anyone whose work involves Domestic Abuse.
Please see the attached event programme for more information and agenda.
You will need a ticket for the event which can be obtained by going to the Eventbrite page:
Dorchester Community Lunch
You are invited to attend my Community Lunch on 13 December, at the Town Hall, from 12.30pm-20m.
A free buffet lunch will be provided.
The event will showcase some of the wonderful projects in our town running food projects and helping people in poverty.
See attached email for more information – and email me directly to reserve a place.
Information, Advice & Consultation
Free Safeguarding Resources and Information
A suite of free online resources launched this month, outlines simple steps that voluntary organisations can take to ensure that they are run in a way that actively prevents beneficiaries, staff and others from suffering harm, harassment, bullying, abuse and neglect.
Link to resources: https://knowhow.ncvo.org.uk/safeguarding
Alcohol Education Trust – The Great Field
The AET have now raised enough funds to begin building a bespoke community space, café and head office on the Great Field, Poundbury. They aim to start building in Spring 2020 and open in late Summer 2020 and this would not be possible without the amazing support of the local community.
Please read more about the vision and plans here: https://alcoholeducationtrust.org/pavilion-in-the-park/
Dorset Council Corporate Plan
(survey closes 20th December)
Dorset Council has published the Dorset Council plan which sets out their ambitions for the next four years.
It covers five key priorities and incorporates the political vision of your new councillors.
To view the plan and add your comments please go to:
OTHER USEFUL INFORMATION AND SUPPORT:
Carers’ lead at RMHC (Royal Manor Health Care), Portland A new carers’ lead for cancer support is available at RMHC Portland. The lead, Sheri Smith, is introduced to carers who are caring for relatives/loved ones. They do not have to live with them but if they are caring for their needs on a regular basis, they can register with Royal Manor Health Care, so they can receive support. Also, they can be given a signed consent to access medical records if necessary. RMHC then registers them with Social Services if they have no online facility.
Social Services contact carers to assess their needs and requirements. They are then offered support to both carer and patient, and give advice on other services available, including a local Carers group that meet once a month. This is not something carers HAVE to take up but its just nice to know it’s there if they need it. There are also Carer Packs at both RMHC’s surgeries with the information if referred to Sheri. She will then make contact and introduce herself.
SCARS - Stalbridge Cancer & Recovery Support meets last Friday of the month 2-4pm at The Hub, Station Road, Stalbridge. www.scarscancersupport.co.uk Email: email@example.com Tracy White 01963 548342. They also operate a Closed Facebook Page called SCARS. Tracy says that if anyone wishes to join they would be welcome. It is a confidential, member’s only group and she will authorise you to be added.
The Grove Hotel in Bournemouth If you, or anyone you know, would like a break in a safe environment with medical staff on hand and near the sea then please tell them about this brilliant hotel. Rosa has stayed there a couple of times and loved it! www.thegrovebournemouth.co.uk
Shine – cancer support for younger adults
Shine exists exclusively to support adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. There is never a good time to have cancer, but we know that younger adults face different issues than their older or younger counterparts - and that many of these are not dealt with by traditional cancer support charities and services. www.shinecancersupport.org
There is a new way to contact the emergency services, in addition to calling them. It is now possible to send a text message to 999 in case of an emergency. This service can be particularly useful for when mobile signal is too poor to support a phone call or if the situation means you're unable to speak to an operator. However, in order to be able to use this service you need to register your mobile phone. To do this online, go to:
OR you can register using SMS
To register using SMS text messages you must:
1. Send the word 'register' in an SMS message to 999
2. You will then receive SMS messages about the service
3. When you have read these SMS messages reply by sending 'yes' in an SMS message to 999
4. You will receive a SMS message telling you that your mobile phone is registered or if there is a problem with your registration
Red Cross SUPPORT AT HOME service
Have you heard of this? They provide help for people coming out of hospital which could well be one of us or someone we know.http://www.redcross.org.uk/What-we-do/Health-and-social-care/Independent-living/Support-at-home
Live Better With Cancer is a very useful website with lots of products and ideas to make your life easier livebetterwith.com/
http://www.creativity4wellbeing.com is a free art resource site “to encourage creativity in the community and purposeful activity for health and wellbeing”.
The Macmillan Citizens Advice Service provides advice on Welfare Benefit, Debt, Housing & Employment issues for people in Dorset affected by cancer. They offer advice for people affected by Cancer in Dorset. The service can provide a home visiting service and has part time advisers based in the Citizens Advice Bureaux in Dorchester, Sherborne, Weymouth & Wimborne. They also hold a drop in outreach service at Dorset County Hospital Williams Avenue Dorchester DT1 2JY on a Wednesday morning between 10 -12.
Telephone Mags on 08454 9000 42 Mon-Fri 10 – 3
Penny Brohn UK run a range of courses, groups and individual therapies designed to help you feel better and live better with cancer, its treatments and side effects.
Whether it’s learning about healthy food, coping with treatment side effects, or getting to grips with the emotional impact of cancer, we can help you find what you need right now. https://www.pennybrohn.org.uk/
BLEEPS AT FORTUNESWELL OUTPATIENTS DCH. Did you know that bleeps are now available to borrow at reception if you have to wait for test results, meds etc so you can go and have a break, relax at the coffee bar or restaurant? Do ask if this would help you and your family.
Something different: SOUTH WEST FISHING FOR LIFE (SWFFL) is an organisation which provides fly fishing sessions for women with breast cancer. The Dorset group meets at The Wrackleford Estate fishery Dorchester, Dorset, DT2 9SN by kind permission of Mr and Mrs Pope. If you would like to go along for a chat and to see what they have to offer ring Gillian, secretary, 01398 371244 or Lead coach Clive 01202 699864.
A new SWFFL group has started - the Tolpuddle group who meet the 1st Thursday of the month at Tolpuddle, Dorchester, Dorset DT2 7H. If you would like to go along and meet the group please contact Lead coach Sallyfirstname.lastname@example.org, Peteremail@example.com, or ring Gillian 01398 371244
Other local cross-cancer support groups with whom we have close links:
Purbeck Workshop – FREE creative escapes for those touched by cancer – meets most weekdays in Wool. Lots of different creative activities to try with new ones added each month. To sign up for their monthly newsletter or for further details:www.purbeckworkshop.org
C-Siders, Weymouth & Portland cancer support group, meets on 1st and 3rd Monday of the month, 7.30-9pm at the Wyke Smugglers Pub, Portland Road, Weymouth. Have a look on their website for a list of activities. Contact: Peter Meacham
The Living Tree meets every Friday at the Friends House in Bridport at 2pm. They have far too many FREE activities for me to list, so please see their website:
Tessa Murphy from Brain Tumour Support has sent through some useful information regarding disabled passes. (The first one looks good for not always having to carry proof of benefits receipt to confirm disability).
- National Disabled Identification Card:
- Merlin Pass – Disabled persons
- And finally, a similar idea for cinemas:
The Anti-cancer Club: It’s about Life. – You can sign up to the weekly newsletter here (or for more info):
Dorset Cancer Care Foundation
Dorset Cancer Care Foundation (tel: 07593 890879, email firstname.lastname@example.org) is helpful for anyone struggling financially due to cancer, they may be able to provide financial assistance.
Types of support DCCF provide include:
Transport and parking costs for treatment
Overnight accommodation during treatment
Household modifications (needed due to illness)
Days out for patients and their families
Domestic help (needed due to illness)
Respite holidays for patients
Specialist buggy or a child with cancer
Cost of child care whilst at appointments
Wigs and prosthetics
Other financial hardships.
DCCF also support Dorset-based cancer organisations for small research projects, local hospice meters and chairs, surgical bras for a hospice etc
For more details their website is http://www.dccf.co.uk
Tracee Cossey: 17th Nov 2019 21:51:00