Butterflies Newsletter 9th May 2020
Published on: 9th May 2020
By Tracee Cossey
BUTTERFLIES CANCER SUPPORT GROUP NEWSLETTER
Saturday, 9th May 2020
*We meet every Wednesday at Dorchester Community Church, (next to the new Damers School, by the Great Field in Poundbury), Liscombe Street, Poundbury, Dorchester, Dorset, DT1 3DF: from 2-4pm.
I hope you’ve been had a good VE Day experience yesterday – I took a drive around a close in the morning (essential purpose, I promise) and saw loads of people putting up bunting and memorabilia in celebration. It was not quite so ‘connected’ here in my street in that regard, but nevertheless, we do seem to do alright on clap for our carers-and-other-staff Thursday ???? One of my friends messaged me tonight and told me she has been outside on her lawn celebrating with her neighbours alongside her for ‘literally hours’ (with a drink or two!) - I guess this is the first step towards some semblance of normalcy.
I’ve been occupying myself doing a project management course online and some ABTA travel training – that particular industry does not know when it is likely to recover, but a cruise company said the other night on a webinar that their projected first sailing is likely to be August. Let’s see what Boris brings in tomorrow’s briefing. I also have been involved in getting a World Earth Day video together for another charity in which I’m involved on an online TV programme. Never one to sit on my laurels for (too) long. The munckin is also keeping me somewhat busy too but I fear I will come out of this experience somewhat rotund and a 5-years-old mentality. If I hear ‘Let it go’ from Frozen again, who knows what will happen?
Towards the end of the newsletter there is a great reference guide for Covid-19 support as supplied by Emma Scott, Community Development Officer and Roy Dean, our resident volunteer at Butterflies. Here is also flyer from Macmillan:
Here is also the buddy list for Butterflies. If anyone needs any Covid-19 support outside of this group, you can also call a local number 01305 221022.
Rosa Adams 07737 234056 (Group Lead)
Dick Foad 07792 637935 (Chairman)
Roy Dean 07788 892908 - 01305 853442
Sandra Baldock 07943 937402 - 01305 757164
Stephen Weldon 07749 646852
Kris Jellett 07871 263070
Viv Steer 07742 877559 - 01305 262715
Marianne Currie 07854 841516
Lynton Burse 07890 728556
Shaun Wright 07792 471666
Tracee Cossey 07591 110672 (please try not to use other number 07766 576639 atm, it is working but plugged in all the time as every time I take it out of the mains, it boots off)
Everyone take care and remain as well as you can.
Tel: 07591 100672
***Our meetings are temporarily suspended***
At each meeting we always start with a nice chat and catch-up, along with tea/coffee and some lovely biscuits. At most of our meetings we either have one or two speakers (on a whole range of subjects, not always cancer related) or an activity of some sort such as Creative Writing.
FREE THERAPIES AT EVERY MEETING
- Aromatherapy and Reflexology – every Wednesday of the month – Tracee Cossey, reflexologist and massage therapist
- Regular 1-1 consultations with Mary Tassell, herbalist
- Regular 1-1 meetings with counsellor Lynne O’Brien
Reflexology and Massage Therapy
Tracee Cossey attends weekly to give massage and reflexology to members. She has worked in a chemo unit in Bedfordshire for three years and has a degree in Complementary Therapies. You can see her website here: http://www.ametrineholistics.net – to book on for the day, there is a first-come, first served basis sheet on the table where we meet where you can sign to say what you’d like.
We have a trained counsellor who joins us, who comes to Butterflies on a Wednesday afternoon. Sessions are 1hr and usually last for at least 6 weeks. Lynne O’Brien is charging a reduced rate of £25p.h and funding is available if you need help meeting the cost - please speak to Rosa or Dick. To book a session, ring Lynne 07580 092388 You can view her website at: http://www.dragonfly-counselling.co.uk/
Herbalist Mary Tassell attends regularly to do 1:1 consultations for specific queries.
Mary has been working as a qualified herbalist for 23 years and is experienced in working with cancer patients.
For more information please visit Mary’s website at: http://www.tassell.net/
Julia and Roy from About Face regularly attend our meetings to support people with head and neck cancer.
Have a look at the books in our library, which are held on the tables in the Community Church, they will be put out for us every week to view. They are free for anyone to borrow but please let me know so I can mark it as out on loan. We aim to provide as many books as possible covering the wide spectrum of cancer, from Macmillan information booklets, self-help books and nutrition, to “my story” etc. If you’ve got a book you’d like to donate to our library then please feel free – we’d greatly appreciate it.
Remember, as always, you're welcome to come and go as you wish and you don't have to join in any of the activities if they don't interest you. You may just want to come for a chat or one of our therapies. You may want to bring a friend or member of the family with you.
Suspended until further notice – We will let you know as soon as we can.
Successive Meetings - We will let you know as soon as we can.
Do feel free to visit our website: www.butterfliescancersupport.co.uk
***If you no longer wish to receive these newsletters, or if you feel this email was not intended for you, then please reply to this email with UNSUBSCRIBE in the subject or hit the unsubscribe button***
About Face run a monthly support group. Their next meeting will be held on: - We will keep you posted when a new date is available.
At 7pm until 9pm
(arriving from 6.45 onwards)
In the downstairs sitting room
“The support group meetings will be held on the FIRST THURSDAY OF THE MONTH at the About Face house. Initially the group will be led by Muriel Hall, Ann Copland and Shaun Wright. We want to use the downstairs lounge and kitchen as we are aware the stairs can be problematic for some.
Please can you let Jane know if you are likely to attend by return email or phone. Email Jane: firstname.lastname@example.org or you can text/ring her mobile on 07966 905595.
*For more information on local events, please see the end of the newsletter.
OTHER USEFUL INFORMATION AND SUPPORT:
Carers’ lead at RMHC (Royal Manor Health Care), Portland A new carers’ lead for cancer support is available at RMHC Portland. The lead, Sheri Smith, is introduced to carers who are caring for relatives/loved ones. They do not have to live with them but if they are caring for their needs on a regular basis, they can register with Royal Manor Health Care, so they can receive support. Also, they can be given a signed consent to access medical records if necessary. RMHC then registers them with Social Services if they have no online facility.
Social Services contact carers to assess their needs and requirements. They are then offered support to both carer and patient, and give advice on other services available, including a local Carers group that meet once a month. This is not something carers HAVE to take up but it’s just nice to know it’s there if they need it. There are also Carer Packs at both RMHC’s surgeries with the information if referred to Sheri. She will then make contact and introduce herself.
SCARS - Stalbridge Cancer & Recovery Support meets last Friday of the month 2-4pm at The Hub, Station Road, Stalbridge. www.scarscancersupport.co.uk Email: email@example.com Tracy White 01963 548342. They also operate a Closed Facebook Page called SCARS. Tracy says that if anyone wishes to join they would be welcome. It is a confidential, member’s only group and she will authorise you to be added.
The Grove Hotel in Bournemouth If you, or anyone you know, would like a break in a safe environment with medical staff on hand and near the sea then please tell them about this brilliant hotel. Rosa has stayed there a couple of times and loved it! www.thegrovebournemouth.co.uk
Shine – cancer support for younger adults
Shine exists exclusively to support adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. There is never a good time to have cancer, but we know that younger adults face different issues than their older or younger counterparts - and that many of these are not dealt with by traditional cancer support charities and services. www.shinecancersupport.org
There is a new way to contact the emergency services, in addition to calling them. It is now possible to send a text message to 999 in case of an emergency. This service can be particularly useful for when mobile signal is too poor to support a phone call or if the situation means you're unable to speak to an operator. However, in order to be able to use this service you need to register your mobile phone. To do this online, go to:
OR you can register using SMS
To register using SMS text messages you must:
1. Send the word 'register' in an SMS message to 999
2. You will then receive SMS messages about the service
3. When you have read these SMS messages reply by sending 'yes' in an SMS message to 999
4. You will receive a SMS message telling you that your mobile phone is registered or if there is a problem with your registration
Red Cross SUPPORT AT HOME service
Have you heard of this? They provide help for people coming out of hospital which could well be one of us or someone we know.http://www.redcross.org.uk/What-we-do/Health-and-social-care/Independent-living/Support-at-home
Live Better With Cancer is a very useful website with lots of products and ideas to make your life easier livebetterwith.com/
http://www.creativity4wellbeing.com is a free art resource site “to encourage creativity in the community and purposeful activity for health and wellbeing”.
The Macmillan Citizens Advice Service provides advice on Welfare Benefit, Debt, Housing & Employment issues for people in Dorset affected by cancer. They offer advice for people affected by Cancer in Dorset. The service can provide a home visiting service and has part time advisers based in the Citizens Advice Bureaux in Dorchester, Sherborne, Weymouth & Wimborne. They also hold a drop-in outreach service at Dorset County Hospital Williams Avenue Dorchester DT1 2JY on a Wednesday morning between 10 -12.
Telephone Mags on 08454 9000 42 Mon-Fri 10 – 3
Penny Brohn UK run a range of courses, groups and individual therapies designed to help you feel better and live better with cancer, its treatments and side effects.
Whether it’s learning about healthy food, coping with treatment side effects, or getting to grips with the emotional impact of cancer, we can help you find what you need right now. https://www.pennybrohn.org.uk/
BLEEPS AT FORTUNESWELL OUTPATIENTS DCH. Did you know that bleeps are now available to borrow at reception if you have to wait for test results, meds etc so you can go and have a break, relax at the coffee bar or restaurant? Do ask if this would help you and your family.
Something different: SOUTH WEST FISHING FOR LIFE (SWFFL) is an organisation which provides fly fishing sessions for women with breast cancer. The Dorset group meets at The Wrackleford Estate fishery Dorchester, Dorset, DT2 9SN by kind permission of Mr and Mrs Pope. If you would like to go along for a chat and to see what they have to offer ring Gillian, secretary, 01398 371244 or Lead coach Clive 01202 699864.
A new SWFFL group has started - the Tolpuddle group who meet the 1st Thursday of the month at Tolpuddle, Dorchester, Dorset DT2 7H. If you would like to go along and meet the group please contact Lead coach Sallyfirstname.lastname@example.org, Peteremail@example.com, or ring Gillian 01398 371244
Other local cross-cancer support groups with whom we have close links:
Purbeck Workshop – FREE creative escapes for those touched by cancer – meets most weekdays in Wool. Lots of different creative activities to try with new ones added each month. To sign up for their monthly newsletter or for further details:www.purbeckworkshop.org
C-Siders, Weymouth & Portland cancer support group, meets on 1st and 3rd Monday of the month, 7.30-9pm at the Wyke Smugglers Pub, Portland Road, Weymouth. Have a look on their website for a list of activities. Contact: Peter Meacham
The Living Tree meets every Friday at the Friends House in Bridport at 2pm. They have far too many FREE activities for me to list, so please see their website:
Forum Otters Cancer Support meets every second Thursday of the month from 2-4pm in the Woodhouse Memorial Gardens Pavilion in Blandford Forum, they can be contacted on 07561 114644.
Tessa Murphy from Brain Tumour Support has sent through some useful information regarding disabled passes. (The first one looks good for not always having to carry proof of benefits receipt to confirm disability).
- National Disabled Identification Card:
- Merlin Pass – Disabled persons
- And finally, a similar idea for cinemas:
The Anti-cancer Club: It’s about Life. – You can sign up to the weekly newsletter here (or for more info):
Dorset Cancer Care Foundation
Dorset Cancer Care Foundation (tel: 07593 890879, email firstname.lastname@example.org) is helpful for anyone struggling financially due to cancer, they may be able to provide financial assistance.
Types of support DCCF provide include:
Transport and parking costs for treatment
Overnight accommodation during treatment
Household modifications (needed due to illness)
Days out for patients and their families
Domestic help (needed due to illness)
Respite holidays for patients
Specialist buggy or a child with cancer
Cost of child care whilst at appointments
Wigs and prosthetics
Other financial hardships.
DCCF also support Dorset-based cancer organisations for small research projects, local hospice meters and chairs, surgical bras for a hospice etc
For more details their website is http://www.dccf.co.uk
Information below supplied by Emma Scott, Community Development Officer, Dorchester Town Council.
Local Community Support
For help if you have no support, call the Dorset Council response team on 01305 221000 from 8am – 8pm, 7 days a week – or email: email@example.com
Dorchester Community Support Group (DCSG) Tel: 07562 389519
Call the DCSG group if you need help with things like doing your shopping or collecting your medicine.
· They also have lots of lovely volunteers who are happy to chat with you if you are just feeling a bit isolated.
· Last week the group, with support from the Town Council, created a very helpful list of shops and business who are still doing deliveries as well as opening times for local pharmacies, vets, banks and other useful services https://bit.ly/dorchestershops2020
If you are a local business who would like to be added to the list, please submit your information using this form and your details will be added in a weekly round-up https://forms.gle/jBC6wkef12MMtgLc8
This amazing group of volunteers has only been running for just under 3 weeks now and by Friday they had already helped 176 local people, with residents calling them directly or being referred to them by a range of agencies including the Red Cross, Age Concern, the Citizens Advice Bureau and many more.
If you would like to go on their register of volunteers, to help out in the community or to be a listening ear, do send them an email.
Help and Kindness website
And you can find out more about groups and services operating in Dorchester – and across Dorset by going to the very useful Help and Kindness website where you can search the area you are interested in: https://www.helpandkindness.co.uk/search/dorset/coronavirus
Covid Mutual Aid
Or if you have a friend or relative living elsewhere in the UK and would like to know if there are any groups that can help them locally, you can find details on the Covid Mutual Aid website at https://covidmutualaid.org then go to ‘Find your local group’.
The Citizen’s Advice Bureau
The CAB are continuing to provide free, independent and confidential advice and information whatever your question.
They offer a full range of advice including help with: Benefits entitlement and claims, Debt management and budgeting, Employment advice including Statutory Sick Pay and rights when laid off work & Advice for the self-employed. Call the Dorset Advice line on 0344 411 1444 or email them via: http://westdorsetca.org.uk/contact-dorchester
Dorset Community Action (DCA)
Contains useful information on a range of topics including:
· Government support for Charitable Sector
· Their free Webinars which are held every Weds – the next one is ‘Marketing for Crisis Recovery’ on Weds 22nd at 11.30am – sign up here: https://www.eventbrite.co.uk/o/dorset-community-action-8226681465
· Links to current funding
· And for a wealth of useful links visit https://www.dorsetcommunityaction.org.uk/covid-19-updates/
Free Public Liability Insurance!
The Dorset Community Response Team are proud to promote an extraordinary offer from Neighbourhood Watch nationally for all informal volunteers supporting our neighbourhood communities.
The aim of this offer is to give all informal volunteers’ access to Free Public Liability Insurance –if you have any questions you can email them at firstname.lastname@example.org
Our Local Foodbanks/Food-aid projects
Many of us have faced significant financial impact as a result of Covid-19. And for some this means shortfalls in being able to pay for food and essential items.
Anyone needing help should feel confident that our 3 local food bank projects in Dorchester can offer support.
The projects in town include:
- The Dorchester Foodbank
- Food Share
- The Dorchester Community Kitchen
All of these projects remain busy and need our support and help during this time, either with donations of food and essential items, or with financial contributions.
Details of opening times, how to access the services and you can donate directly on their websites.
Thanks to all of the extremely hardworking volunteers involved in these groups.
Domestic Violence and Abuse
· The Dorset Police are running a campaign to raise awareness around domestic abuse amid concerns it may increase over the coming weeks due to the impact of Coronavirus. Communities are being reassured they will still have access to vital support services despite the current uncertainty.
A new campaign will highlight the fact that whatever type of abuse takes place – whether it is physical, sexual, emotional, psychological or financial – the abuser is trying to control the victim and uses abuse or violence to achieve that control. It will also tell victims how to access help and support.
The campaign aims both to raise awareness that domestic abuse may increase with people self-isolating, and to provide reassurance that help is available during these unprecedented times. For ideas of places to go for help go to: https://www.dorset.police.uk/abuse-help
Or visit the Dorset Council website - https://www.dorsetcouncil.gov.uk/your-community/community-safety/domestic-abuse/help-for-those-who-have-experienced-domestic-abuse.aspx
And see the following list of local and national services during Covid-19
Mental Health and Wellbeing
· These are difficult times for many of us, and we all need to look after our mental wellbeing. We may be finding fun and creative ways to do this, or using online apps to introduce us to mediation or mindfulness.
For other sources of help available during Covid-19, or if you are experiencing more serious issues, have a look at the attached information and links or visit https://dorsetmind.uk/
Other Covid-19 Mental Health Support
We at DTCP & Colliton Street Psychotherapy Services are able to announce that we are able to offer two free specialized services during this time of crisis.
KEY WORKERS in Dorset & Somerset
We are able to offer 6 short-term counselling sessions free of charge to all those of you who are working in hospitals, health care, care homes, shops, in essential service industries and as carers in people’s homes. These sessions cannot be face to face and maybe by telephone, Skype or Zoom.
Please contact us in the usual way via our website www.psychotherapydorset.co.uk or by telephoning 07714 330120.
ANYONE AFFECTED BY COVID-19
If you or someone you know could benefit from a one-off talk to someone who does not know you and who has had a professional training, we have introduced a listening service.
If you contact us, we will arrange for someone to call you back. He/she will be able to listen and speak with you for 50 minutes. The service aims to help you share some of the impact on you and to regain some sense of control. It is not an advice service and cannot be an alternative to regular counselling or therapy.
Please contact us in the usual way via our website www.psychotherapydorset.co.uk or by telephoning 07714 330120.
· Zoom! Many of us are using the website Zoom from home now for online meetings, gatherings with friends & family and quizzes! For some (free) top tips check out this helpful youtube video https://www.youtube.com/watch?v=v5SPEOoXvO0 by Chris Croft, a local management and leadership trainer.
· Healthwatch Dorset has launched a new survey asking local people to share their stories to help identify how health and care services are adapting and working well during the coronavirus, and to highlight common challenges that need to be addressed.
The survey gives local people an opportunity to anonymously share their views and experiences of how coronavirus has changed the way they access services. Healthwatch Dorset will review this public feedback and report back to those in charge of health and care services to help them learn and adapt, now and in the future when the virus outbreak has passed.
Information below provided by Roy Dean, from Dorset Council website:
The Dorset Council website, www.dorsetcouncil.gov.uk, is being frequently updated with all the latest local information. This is your first port of call if you need help or advice.
Financial information for individuals
The Government has now issued guidance for Local Authorities regarding the new Council Tax COVID-19 hardship fund 2020-21. DC is now able to provide further Council Tax relief via this scheme.
Waste and Recycling
As a result of the closure of country parks, some colleagues from countryside are being trained to help with waste collections, to help provide cover over coming weeks.
Digital champions are ready to help
A new helpline is available for people who need help with home IT. It offers support for things like eConsult for online GP appointments, Skype to keep in contact with the family, or help in accessing online resources to help your children learn. Our digital champions – a group of volunteers mostly made up of retired IT professionals – are ready to help.
Age UK North, South and West Dorset (AKA Age UK Dorchester) are taking 200 calls per day from isolated people who need help with getting food shopping and other supplies. Anyone can contact Age UK for help on email@example.com or 01305 269444 – regardless of your age.
Citizens Advice continues to provide free, independent and confidential advice and information whatever your question. They offer a full range of advice including help with:
Benefits entitlement and claims
Debt management and budgeting
Employment advice including Statutory Sick Pay and rights when laid off work
Advice for the self-employed
Contact the Dorset Adviceline on 0344 411 1444 or email your local branch:
Central (North Dorset, Sherborne, Dorchester & Weymouth & Portland)
East Dorset: firstname.lastname@example.org
Tracee Cossey: 9th May 2020 03:33:00