Butterflies Newsletter 1st March 2019
Published on: 28th February 2019
By Tracee Cossey
BUTTERFLIES CANCER SUPPORT GROUP NEWSLETTER
Friday, 1st March 2019
We now meet every Wednesday at Dorchester Community Church, (next to the new Damers School), Liscombe Street, Poundbury, Dorchester, Dorset, DT1 3DF: from 2-4pm.
Haven’t we had a lovely few days recently? Lots of people have been in their gardens, cleaning their cars and it feels like the winter is really behind us. We had a committee meeting last week and are planning some nice events for this year, trips out and so on and it feels really positive for Butterflies to be doing some nice things in the future as a group.
I’ve had two adventurous trips to London via Yeovil Junction station recently, both ending in me arriving home rather late and the last one I had to share a taxi (courtesy of British Rail) from Salisbury to Yeovil. I’ve several trips away planned over the few months - to Bedfordshire for an ex-student’s wedding, to Bideford to see relatives, to Leeds for an event and to Sunderland to visit friends. Fully looking forward to getting a fix of friends in the process, this weekend coming I’ve managed to squeeze in a total of eight people over two days! It’s like a whirlwind but so much fun.
07591 110672/ 07766 576639 / 01305 753478
At each meeting we always start with a good old chat and catch-up, along with tea/coffee and some lovely cake. At most of our meetings we either have one or two speakers (on a whole range of subjects, not always cancer related) or an activity of some sort such as Creative Writing.
FREE THERAPIES AT EVERY MEETING
- Aromatherapy and Reflexology with Tracee – every Wednesday of the month.
Julia and Roy from About Face regularly attend our meetings to support people with head and neck cancer.
Have a look at the books in our library, which are held on the tables in the Community Church, they will be put out for us every week to view. They are free for anyone to borrow but please let me know so I can mark it as out on loan. We aim to provide as many books as possible covering the wide spectrum of cancer, from Macmillan information booklets, self-help books and nutrition, to “my story” etc. If you’ve got a book you’d like to donate to our library then please feel free – we’d greatly appreciate it.
Remember, as always, you're welcome to come and go as you wish and you don't have to join in any of the activities if they don't interest you. You may just want to come for a chat or one of our therapies. You may want to bring a friend or member of the family with you.
Free Therapies: Reflexology and Massage with Tracee.
Wednesday, 6th March 2019 - General chat session
Wednesday, 13th March 2019 - Christine McFadden - Cooking with different flours
Wednesday, 20th March 2019 - Maria Morris- Easy Ways to get your Daily D.O.S.E of Happiness ~ using all your senses and the healing power of nature.
Wednesday, 27th March 2019 - Macmillan Service - Accessing information and barriers faced
Wednesday, 3rd April 2019 - Sarah Cooper - Creative Writing; from 2:15pm
THIS MONTH’S COFFEE MORNING IS SATURDAY, 30th MARCH 2019, 11-1, HENDOVER’S CAFÉ, WEYMOUTH ROAD, DORCHESTER (The café with the green chairs outside on the way to Brewery Square, near the Chemist’s), our Chair, Dick Foad and Tracee Cossey will be running the next coffee morning.
Visit our website: www.butterfliescancersupport.co.uk
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About Face run a monthly support group. Their next meeting will be held on:
Thursday 7th March 2019
At 7pm until 9pm
(arriving from 6.45 onwards)
In the downstairs sitting room
“The support group meetings will be held on the FIRST THURSDAY OF THE MONTH at the About Face house. Initially the group will be led by Muriel Hall, Ann Copland and Shaun Wright. We want to use the downstairs lounge and kitchen as we are aware the stairs can be problematic for some.
Please can you let Jane know if you are likely to attend by return email or phone. Email Jane: email@example.com or you can text/ring her mobile on 07966 905595.
From Brain Tumour Support
The next support group will be on March 5th at 1.30 at the Grove Hotel, Grove Road, Bournemouth as usual. This month we will have two visitors from the Dorset Macmillan Information Project which is a 3 year project. The aim of the DMCI Project is to ensure that cancer patients, their families and carers across Dorset are able to access information and user support in the right place, in the right way and at the right time for their levels of need. The purpose of them attending our meeting is to ask you some questions and hear your views. I have attached a flyer about the project and hope that many of you will be able to come to get your voices heard.
Unfortunately, the April group has been cancelled as unfortunately, none of the volunteers are available. However, if a few of you want to meet as usual as a social I am sure we can arrange to have the room and the usual tea and coffee. Please let me know if you would like this. I am really sorry to have to cancel in April especially when we didn’t have a group last month.
Tessa, (Brain Tumour Support Worker)
22nd – 24th March 2019 - The Weekend 2019 - a chance to relax and spend time with others affected by brain tumours
The draft programme for Brain Tumour Support’s flagship event, The Weekend, is now available. Packed with workshops, presentations and opportunities for you to meet some of the UK's top specialists in brain tumour treatment and diagnosis, this event is your chance to spend some quality time with others who understand what you are going through. Our venue, Whittlebury Hall, has fantastic grounds and a beautiful spa, and our programme gives you plenty of opportunities to enjoy some free time.
The price for the whole weekend, from Friday lunchtime to Sunday lunchtime and including all activities, accommodation, and meals with a gala dinner on Saturday evening, is £190 per person or £330 per couple. For transport options, childcare arrangements and other information, please visit our website.
To book, please email - firstname.lastname@example.org
OTHER USEFUL INFORMATION AND SUPPORT:
Carers’ lead at RMHC (Royal Manor Health Care), Portland A new carers’ lead for cancer support is available at RMHC Portland. The lead, Sheri Smith, is introduced to carers who are caring for relatives/loved ones. They do not have to live with them but if they are caring for their needs on a regular basis, they can register with Royal Manor Health Care, so they can receive support. Also, they can be given a signed consent to access medical records if necessary. RMHC then registers them with Social Services if they have no online facility.
Social Services contact carers to assess their needs and requirements. They are then offered support to both carer and patient, and give advice on other services available, including a local Carers group that meet once a month. This is not something carers HAVE to take up but its just nice to know it’s there if they need it. There are also Carer Packs at both RMHC’s surgeries with the information if referred to Sheri. She will then make contact and introduce herself.
SCARS - Stalbridge Cancer & Recovery Support meets last Friday of the month 2-4pm at The Hub, Station Road, Stalbridge. www.scarscancersupport.co.uk Email: email@example.com Tracy White 01963 548342. They also operate a Closed Facebook Page called SCARS. Tracy says that if anyone wishes to join they would be welcome. It is a confidential, member’s only group and she will authorise you to be added.
The Grove Hotel in Bournemouth If you, or anyone you know, would like a break in a safe environment with medical staff on hand and near the sea then please tell them about this brilliant hotel. Rosa has stayed there a couple of times and loved it! www.thegrovebournemouth.co.uk
Shine – cancer support for younger adults
Shine exists exclusively to support adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. There is never a good time to have cancer, but we know that younger adults face different issues than their older or younger counterparts - and that many of these are not dealt with by traditional cancer support charities and services. www.shinecancersupport.org
There is a new way to contact the emergency services, in addition to calling them. It is now possible to send a text message to 999 in case of an emergency. This service can be particularly useful for when mobile signal is too poor to support a phone call or if the situation means you're unable to speak to an operator. However, in order to be able to use this service you need to register your mobile phone. To do this online, go to:
OR you can register using SMS
To register using SMS text messages you must:
1. Send the word 'register' in an SMS message to 999
2. You will then receive SMS messages about the service
3. When you have read these SMS messages reply by sending 'yes' in an SMS message to 999
4. You will receive a SMS message telling you that your mobile phone is registered or if there is a problem with your registration
Red Cross SUPPORT AT HOME service
Have you heard of this? They provide help for people coming out of hospital which could well be one of us or someone we know.http://www.redcross.org.uk/What-we-do/Health-and-social-care/Independent-living/Support-at-home
Live Better With Cancer is a very useful website with lots of products and ideas to make your life easier livebetterwith.com/
http://www.creativity4wellbeing.com is a free art resource site “to encourage creativity in the community and purposeful activity for health and wellbeing”.
The Macmillan Citizens Advice Service provides advice on Welfare Benefit, Debt, Housing & Employment issues for people in Dorset affected by cancer. They offer advice for people affected by Cancer in Dorset. The service can provide a home visiting service and has part time advisers based in the Citizens Advice Bureaux in Dorchester, Sherborne, Weymouth & Wimborne. They also hold a drop in outreach service at Dorset County Hospital Williams Avenue Dorchester DT1 2JY on a Wednesday morning between 10 -12.
Telephone Mags on 08454 9000 42 Mon-Fri 10 – 3
Penny Brohn UK run a range of courses, groups and individual therapies designed to help you feel better and live better with cancer, its treatments and side effects.
Whether it’s learning about healthy food, coping with treatment side effects, or getting to grips with the emotional impact of cancer, we can help you find what you need right now. https://www.pennybrohn.org.uk/
BLEEPS AT FORTUNESWELL OUTPATIENTS DCH. Did you know that bleeps are now available to borrow at reception if you have to wait for test results, meds etc so you can go and have a break, relax at the coffee bar or restaurant? Do ask if this would help you and your family.
Something different: SOUTH WEST FISHING FOR LIFE (SWFFL) is an organisation which provides fly fishing sessions for women with breast cancer. The Dorset group meets at The Wrackleford Estate fishery Dorchester, Dorset, DT2 9SN by kind permission of Mr and Mrs Pope. If you would like to go along for a chat and to see what they have to offer ring Gillian, secretary, 01398 371244 or Lead coach Clive 01202 699864.
A new SWFFL group has started - the Tolpuddle group who meet the 1st Thursday of the month at Tolpuddle, Dorchester, Dorset DT2 7H. If you would like to go along and meet the group please contact Lead coach Sallyfirstname.lastname@example.org, Peteremail@example.com, or ring Gillian 01398 371244
Other local cross-cancer support groups with whom we have close links:
Purbeck Workshop – FREE creative escapes for those touched by cancer – meets most weekdays in Wool. Lots of different creative activities to try with new ones added each month. To sign up for their monthly newsletter or for further details:www.purbeckworkshop.org
C-Siders, Weymouth & Portland cancer support group, meets on 1st and 3rd Monday of the month, 7.30-9pm at the Wyke Smugglers Pub, Portland Road, Weymouth. Have a look on their website for a list of activities. Contact: Peter Meacham
The Living Tree meets every Friday at the Friends House in Bridport at 2pm. They have far too many FREE activities for me to list, so please see their website:
Tessa Murphy from Brain Tumour Support has sent through some useful information regarding disabled passes. (The first one looks good for not always having to carry proof of benefits receipt to confirm disability).
- National Disabled Identification Card:
- Merlin Pass – Disabled persons
- And finally, a similar idea for cinemas:
The Anti-cancer Club: It’s about Life. – You can sign up to the weekly newsletter here (or for more info):
Dorset Cancer Care Foundation
Dick Foad, our Chair, has been speaking with Dorset Cancer Care Foundation (tel: 07593 890879, email firstname.lastname@example.org) and would like to mention that if anyone is struggling financially due to cancer, they may be able to provide financial assistance.
Types of support DCCF provide include:
Transport and parking costs for treatment
Overnight accommodation during treatment
Household modifications (needed due to illness)
Days out for patients and their families
Domestic help (needed due to illness)
Respite holidays for patients
Specialist buggy or a child with cancer
Cost of child care whilst at appointments
Wigs and prosthetics
Other financial hardships.
DCCF also support Dorset-based cancer organisations for small research projects, local hospice meters and chairs, surgical bras for a hospice etc
For more details their website is http://www.dccf.co.uk
Tracee Cossey: 28th Feb 2019 04:16:00